Note:  Our reference list with links is currently being updated. Please check back or sign up to follow our updates. Please contact us if you have additional information that would be helpful or if you would like to volunteer to help us develop our resources.

 

100-day kit. This kit was one of the main recommendations by the pediatrician who diagnosed our son with autism. It is offered to newly diagnosed families by Autism Speaks (click here).  It recommends what a family needs to do in the first 100 days after the diagnosis is made. Initially, our family could not order it because we did not live in the USA. A year later, we figured out a way to get the electronic version in Vietnam. Had we had this information, we would have much more quickly understood autism and what we needed to do.  Let us know if you need help to get copy and how to apply the information in your location/situation.    

 

A365. A365 is the lead organization raising awareness about autism in Vietnam. Please see their website (A365.vn) for developmental testing (MCHAT-R, ASQ3) for your child. They are currently updating their website with improved family training and much more.

 

AAP 2016.  American Academy of Pediatrics.  AAP is the leading organization in the United States for children’s health. In 2016, they issued updated screen time limits for children as the body of evidence was showing that there are a number of associated health risks.   See:  Council of communication and media. Media and young minds. Pediatrics. 2016;138:e20162591(click here).

 

Act Early.  Act Early (click here) is a US CDC program that aims to improve early identification of children with autism and other developmental disabilities so children and families can get the services and support they need. The program is made up of three components: Health education campaign. Act Early Initiative, and Research and evaluation.   They produce the Act Early CDC’s Milestone Tracker App (click here) to track early childhood develop.  This is the app that our family has used for our infant and that we wish we had used for our first son.

 

ASQ3.  Ages and Stages Questionnaires (ASQ – 3) is a set of questionnaires about children’s development. Screening provides a quick look at how children are doing in important areas, such as communication, gross motor, fine motor, personal-social skills, and problem-solving skills. It can be used for children from 1 month to 5 ½ years old, and it’s designed to be filled out by parent or caregiver. If possible, it is best to have an experienced person complete this form to provide more accurate information.   It is available at A365.vn .

 

CDC.  The United States Centers for Disease Control and Prevention is the lead government agency in the US for all disease prevention and control in the USA.  This is a source for reliable information.  They have an initiative (Learn the Signs, Act Early), a number of documents and on-line trainings that are very helpful for autism.

 

CDC1.  What is Autism Spectrum Disorder? (click here).  

 

CDC2. Act Early (click here) is a US CDC program that aims to improve early identification of children with autism and other developmental disabilities so children and families can get the services and support they need. The program is made up of three components: Health education campaign. Act Early Initiative, and Research and evaluation.   

 

CDC3. Milestone Tracker App (click here) to track early childhood develop.  This is the app that our family has used for our infant and that we wish we had used for our first son.

 

CDC4.  Early Intervention and Education for Autism Spectrum Disorder - A Closer Look (click here).

 
CDC5. Treatment and Intervention Services for Autism Spectrum Disorder (click here). 

 

CDC6. Physician training (click here).

 

Cheng 2019. Cheng J, Eskenazi B, Widjaja F, Cordero JF, Hendren RL. Improving autism perinatal risk factors: A systematic review. Med Hypotheses. 2019;127:26-33 (click here).

 

Elder 2017.  Elder JH, Kreider CM, Brasher SN, Ansell M. Clinical impact of early diagnosis of autism on the prognosis and parent-child relationships. Psychol Res Behav Manag. 2017;10:283-92 (click here).

 

Elsabbagh 2012.  Elsabbagh M, Divan G, Koh YJ, Kim YS, Kauchali S, Marcin C, et al. Global prevalence of autism and other pervasive developmental disorders. Autism Res. 2012;5(3):160-79 (click here).

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ESDM1.  Rogers S, Lee AM, Dawson G, Vismara LA.  An Early Start for Your Child with Autism: Using Everyday Activities to Help Kids Connect, Communicate, and Learn.  XX Tantor Audio (Publisher).  This is the most recommended book for helping families with young children with developmental delays or other symptoms of autism.  It is available in hard copy and electronic versions from Amazon (click here).  This is the first book I read.  These authors developed the Early Start Denver Model.  If you are interested in becoming a sponsor, we would like to get this book first translated into Vietnamese and then all other major languages.   

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ESDM2.  Rogers S and Dawson G.  Early Start Denver Model for Young Children with Autism: Promoting Language, Learning, and Engagement. This book is only available in a hard copy from Amazon.com (click here).  This is one of the best books available for parents desiring advanced learning and for autism professionals.   I read this in preparation for early intervention with our infant if it was needed.   I followed on with the introductory on-line training for ESDM (see ESDM3).

 

ESDM3.  Early Start Denver Model Introductory Workshops (click here).  I attended this on-line workshop which I found very helpful.  The next steps required international travel or brining experts to Vietnam which was cost-limiting at that time.

 

Emberti Gialloreti L, Mazzone L, Benvenuto A, Fasano A, Alcon AG, Kraneveld A, et al. Risk and Protective Environmental Factors Associated with Autism Spectrum Disorder: Evidence-Based Principles and Recommendations. Journal of Clinical Medicine. 2019 Feb 8;8(2):217. Available from: http://dx.doi.org/10.3390/jcm8020217

 

Harle B. Intensive early screen exposure as a causal factor for symptoms of autistic spectrum disorder: The case for <<Virtual autism>>. Trends Neurosci Educ. 2019;17:100119.

 

Heffler 2020.  Heffler KF, Sienko DM, Subedi K, McCann KA, Bennett DS. Association of Early-Life Social and Digital Media Experiences with Development of Autism Spectrum Disorder–Like Symptoms. JAMA Pediatr. Published online April 20, 2020.  doi:10.1001/jamapediatrics.2020.0230

 

Hoang 2019. Hoang VM, Le TV, Chu TTQ, Le BN, Duong MD, Thanh NM, et al. Prevalence of autism spectrum disorders and their relation to selected socio-demographic factors among children aged 18-30 months in northern Vietnam, 2017. Int J Ment Health Syst. 2019;13:29.

Landrigan 2019.  Landrigan PJ, Fuller R, Fisher S, Suk WA, Sly P, Chiles TC, et al. Pollution and children's health. Sci Total Environ. 2019;650(Pt 2):2389-94.

 

Orinstein 2014. Orinstein AJ, Helt M, Troyb E, Tyson KE, Barton ML, Eigsti IM, et al. Intervention for optimal outcome in children and adolescents with a history of autism. J Dev Behav Pediatr. 2014;35(4):247-56.

 

Maenner 2016. Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2016.

 

More than Words.  Sussman F. More Than Words Guidebook, 2nd Ed.  A Parent's Guide to Building Interaction and Language Skills for Children with Autism Spectrum Disorder or Social Communication Difficulties.  2012 (click here).  This is the second best book I read.  I recommend it for all parents and autism professionals training parents.   It is only available in hard copy.   I ordered it from Amazon where it came without the DVD.   It is available with a DVD from hanen.org

 

PLAY Project. The PLAY Project’s Autism Intervention Program: Helping young children with autism reach their full potential through PLAY (click here).  This is the family training recommended by our developmental pediatrician.  The on-line videos are very helpful, but do not include enough detail. Full training required international travel at the time of our son’s diagnosis. They report full on-line training is in development.

British Council 2013.  British Council. THE ENGLISH EFFECT: The impact of English, what it’s worth to the UK and why it matters to the world. 2013.

 

Rogers 2010.  Rogers S and Dawson G.  Early Start Denver Model for Young Children with Autism: Promoting Language, Learning, and Engagement.  XX, XX.  This book is only available in a hard copy from Amazon.com (click here).  This is one of the best books available for parents desiring advanced learning and for autism professionals.   I read this in preparation for early intervention with our infant if it was needed.   I followed on with the introductory on-line training for ESDM (see ESDM3).

 

Rogers 2012.  Rogers S, Lee AM, Dawson G, Vismara LA.  An Early Start for Your Child with Autism: Using Everyday Activities to Help Kids Connect, Communicate, and Learn.  XX Tantor Audio (Publisher).  This is the most recommended book for helping families with young children with developmental delays or other symptoms of autism.  It is available in hard copy and electronic versions from Amazon (click here).  This is the first book I read.  These authors developed the Early Start Denver Model.  If you are interested in becoming a sponsor, we would like to get this book first translated into Vietnamese and then all other major languages.   

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Sadeghi S, Pouretemad H, Khosrowabadi R, Fathabadi J, Nikbakht S. Behavioral and electrophysiological evidence for parent training in young children with autism symptoms and excessive screen-time. Asian J Psychiatr. 2019;45:7-12.

 

Slobodin 2019.  Slobodin O, Heffler KF, Davidovitch M. Screen Media and Autism Spectrum Disorder: A Systematic Literature Review. J Dev Behav Pediatr. 2019;40(4):303-11.

 

Wetherby 2018.  Wetherby AM, Woods J, Guthrie W, Delehanty A, Brown JA, Morgan L, et al. Changing Developmental Trajectories of Toddlers with Autism Spectrum Disorder: Strategies for Bridging Research to Community Practice. J Speech Lang Hear Res. 2018;61(11):2615-28.

WHO 2019.  World Health Organization. Guidelines on physical activity, sedentary behaviour and sleep for children under 5 years of age. 2019.  2019.4-eng.pdf.

Zablotsky 2019.  Zablotsky B, Black LI, Maenner MJ, Schieve LA, Danielson ML, Bitsko RH, et al. Prevalence and Trends of Developmental Disabilities among Children in the United States: 2009-2017. Pediatrics. 2019;144(4).